Kaz Clay

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KazKaz has had quite the journey already, with only a few years under his belt. He needed survival assistance at birth and had a NICU stay of about a month and a half. When he finally made it home, he returned back to the hospital with a diagnosis of pyloric stenosis at just 2 months old and underwent his first surgery to repair his pyloris. At four months Kaz required a helmet to round out his flatten head, which he sported for 3 months. Around 7 months, during a routine check up, the doctor shared that Kaz’s legs were too tight and something was wrong. From there, Kaz had an evaluation through the First Steps program and began physical and occupational therapy to assist and treat what seemed to be cerebral palsy symptoms. When Kaz reached the age of two and was still unable to walk or even stand independently, he began a more aggressive treatment through Cincinnati Children’s hospital through botox injections and casting. This process was extremely helpful with getting a stretch in Kaz’s once very tight, spastic ankles and legs, however this was only temporary. After a couple of months the tightness came back and took over his legs. About 6 months ago, Kaz’s Mom began researching after hearing of a “life-changing” surgery for kids with Cerebral Palsy just like Kaz. She found the best doctor that performs the surgery called, selective Dorsal Rhizotomy and started the process to see if Kaz was a candidate. After sending the video evauation to Dr. Park in St. Louis, Kaz was approved and scheduled for surgery. On April 7th , Kaz had a “life-changing” surgery and received his “new legs”. The surgery was a success and his doctor predicts that Kaz should be walking within a year. Kaz receives physical therapy 5x a week in Lexington and also has multiple stretch sessions at home daily to strengthen his muscles. The family needed a specialty wheelchair that was costly. the wheelchair needed to be custom build with specifications from his surgeon. The Toy Chest was able to provide this important addition to Kaz’s recovery process. The wheelchair will assist him in maneuvering around the family home and is expandable when Kaz begins walking will serve as an assistive device. It also converts to a car seat and is easily manageable by one parent. It will especially be helpful as Kas continues his outpatient therapy and goes to doctor visits.